KEBUTUHAN DAN PERAWATAN ANAK PENYANDANG CEREBRAL PALSY YANG MENGALAMI DROOLING STUDI EKSPLORASI

ANDRI KENTI GAYATINA, Prof. Dr. dr. Elisabeth Siti Herini, Sp.A(K).; Dr. Fitri Haryanti, S.Kp., M.Kes.

2017 | Tesis | S2 Keperawatan

Latar Belakang: Drooling adalah suatu kejadian hilangnya air liur yang tidak disengaja beserta konten oral lainnya dari mulut. Keluarga adalah tokoh utama yang selalu mendampingi dan menghadapi anak cerebral palsy. Mengetahui secara langsung tentang persepsi keluarga yang dapat menjelaskan gambaran kebutuhan dan perawatan pada anak penyandang CP yang mengalami drooling di YPAC Semarang, sehingga dilakukan studi eksplorasi mendalam terhadap partisipan ibu. Tujuan: Mengeksplorasi kebutuhan dan perawatan serta harapan orang tua anak penyandang CP yang mengalami drooling. Metode: Penelitian kualitatif dengan pendekatan fenomenologi yang dilaksanakan di YPAC Semarang pada bulan September 2016. Pengambilan data dilakukan dengan metode wawancara mendalam tehadap 6 partisipan ibu yang dipilih melalui purposive sampling dan 1 orang dokter rehabilitasi medik serta 1 orang guru sebagai partisipan triangulasi. Analisis data dilakukan menurut langkah-langkah Collaizi. Hasil : Penelitian ini menghasilkan 10 tema yaitu : kebutuhan mengatasi drooling; mengatasi perasaan sedih, malu, hancur, rendah diri, sakit hati, sensitive, tersinggung bila anak direndahkan, tidak tega, perasaan menolak, tidak terima, takut dan menyalahkan diri sendiri; mengatasi rasa malu anak; pembiayaan untuk terapi anak; kekuatan, rasa semangat, rasa syukur, kesabaran dan ikhtiar; diterima oleh masyarakat dan perhatian oleh pemerintah; modifikasi lingkungan; upaya mengatasi drooling; pemahaman ibu yang kurang; harapan ibu terhadap yayasan dan pemerintah tentang pelayanan kesehatan, pendidikan, serta kemandirian anak. Kesimpulan: Optimalisasi pemenuhan kebutuhan dan perawatan pada anak CP yang mengalami drooling grade IV dan V adalah dengan mengatasi drooling menggunakan alat penyerap drooling dan perawatan jangka panjang.

Background: Drooling is the unintentional loss of saliva along with other oral content from the mouth. Family is the main character who always accompanies and faces them as well as being the most important center for children with cerebral palsy. Knowing directly about the family perception can explain the depiction of need and treatment to children with CP experiencing drooling in YPAC Semarang, so that the exploration study was done to the participant of mother. Aim: to explore the need and treatment as well as parents expectation of children with CP experiencing drooling. Method: It is qualitative study with phenomenology approach which was done in YPAC Semarang in September 2016. Data were collected with in-depth interview method by using a semi-structured interview guidelines against 6 participants (mothers) who were selected through purposive sampling and 1 medical rehabilitation doctor and 1 teacher as triangulation participant. The Data analysis was performed according to the steps Colaizzi. Result: The results of this research obtained ten themes, namely: the need to overcome drooling; overcoming feeling of sadness, shame, crushed, low selfesteem, hurt, sensitive, irritable if the child humiliated, do not have the heart to, feeling reject, not accept, fear and blame themselves; overcoming shyness of children and negative response from their friends; financing for child therapy; strength, a sense of excitement, gratitude, patience and effort; the need to be accepted by society and get the attention from the government; modification of books and drooling dryers; the mothers efforts to overcome drooling; less understanding of mothers; Mother hopes to foundations and government on health services, education, and the childs independence. Conclusion: The optimization in fulfilling the needs and treatment as well as parents expectations to children with CP experiencing drooling grade IV and V by use of absorber drooling and long-term care

Kata Kunci : cerebral palsy, drooling, pemenuhan kebutuhan dan perawatan oleh ibu., cerebral palsy, drooling, the fulfillment of needs and treatment by parents.